Tashkent, Uzbekistan (UzDaily.com) -- An international month of informing the public about ichthyosis is held annually in May. Doctors and people with ichthyosis talk about this disease, thus drawing public attention to this topic.

Ichthyosis is a genetic disorder that manifests itself at birth or in the first months of life. It occurs as a result of the "breakdown" of genes, which disrupts the process of keratinization of skin cells. The skin becomes dry, scales appear on it. That is why such people are called "fish". With ichthyosis, it is also possible to damage some organs and systems: vision, hearing, musculoskeletal system, slowing down of physical and mental development, etc. There are many forms of ichthyosis, dermatologists count at least 28. It is impossible to cure ichthyosis, but thanks to symptomatic treatment, care skin care, hygiene, various types of therapy and the intake of necessary vitamins, you can significantly improve the condition of the skin, and therefore well-being.

In our country, the only charitable organization supporting people with ichthyosis and other skin genetic diseases is the NGO Kapalak bolalar. To date, it is known about 1872 "fish" living in Uzbekistan, of which 60 people are already under the care of the organization. They constantly receive the necessary topical products: emollient and exfoliating ointments, special cosmetics for skin care, and much more.

“Since 2020, our organization has been helping people with ichthyosis. The NGO has a whole program to support people with ichthyosis. It includes targeted assistance to families in which "fish" live, rehabilitation and hospitalization of wards, patronage, psychological and legal support. In addition, we provide training for doctors and other healthcare professionals. And the main purpose of the month of informing society about ichthyosis is a wide educational activity so that as many people as possible can learn about this ailment. In order for people to understand that this disease is not contagious and help the “fish” to socialize more easily in society,” says Guzal Jabbarova, head of the medical and social service of the NGO Kapalak bolalar.

For "fish" and their families, skin care is a daily job, especially when it comes to children. For example, even in the simple use of creams and ointments, regularity is needed. Despite work, schedule and other matters, relatives of children with ichthyosis should systematically, at least twice a day, in the morning and before bedtime, bathe them, then lubricate the skin with special creams and ointments, balms and oils. But the main thing is that such daily care brings its results. With proper care, people with ichthyosis feel much better. The skin softens, the scales become much smaller, the discomfort and itching stop, hence the mood of the "fish" changes. They become calmer, make contact and socialize more easily.

- In the month of informing society about ichthyosis around the world, various organizations hold round tables, conferences, social events and other events. Their task is to convey information about this serious disease to society and doctors. But the most important thing is that people with ichthyosis can be provided with effective assistance, which means they can live fully,” added Guzal Jabbarova.

This month, specialists from the NGO Kapalak bolalar also conduct lectures and seminars for medical workers on ichthyosis. They share their experience and knowledge in the treatment of this disease, as well as the peculiarities of caring for the skin of "fish".